Feb 24, 2022
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lisa Phelps Sarfaty ahead of February 28, Rare Disease Day. Sarfaty is vice president of community engagement at the National Organization for Rare Disorders (NORD), a coalition of 330 patient advocacy groups and the leading voice for an estimated...
Feb 8, 2022
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Evanthia Bernitsas, MD, director of the Multiple Sclerosis Treatment and Immunology Clinical Research Center at Wayne State University in Detroit, Michigan. Dr. Bernitsas is an expert on NMOSD and its effect on patients of...
Feb 1, 2022
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Nicola Longo, MD, PhD, is a professor of pediatrics and chief of the University of Utah's Division of Medical Genetics in Salt Lake City. He’s also an expert in LCFAOD and the role of carnitine—a natural chemical found mostly in the muscle—in...