Apr 26, 2022
Larry Luxner, senior correspondent for Rare Disease Advisor, talks with Laura McLinn, the Indiana mom of 12-year-old Jordan McLinn, who has Duchenne muscular dystrophy. Jordan, who became the unofficial poster boy of the "Right to Try" movement, has just completed 5 years in a clinical trial for a novel exon 53...
Apr 22, 2022
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Anthony Feinstein, PhD, a professor of psychiatry at the University of Toronto and a world-renowned neuropsychiatrist. We talk to the South African-born Dr. Feinstein about his new book, "Mind, Mood and Memory: The Neurobehavioral Consequences...
Apr 11, 2022
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jay Griffin, the father of a North Carolina boy with Duchenne muscular dystrophy, about his family's struggles and the difficulty blacks and other minorities often face when it comes to treatment for rare...
Apr 6, 2022
Larry Luxner, senior correspondent for Rare Disease Advisor, talks with Meridith O’Connor, a patient advocate and founder of a chronic illness consultancy, about her efforts to raise awareness of myasthenia...