Jun 30, 2022
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews wheelchair-bound Justin Skeesuck, who didn't let his progressive genetic disease stop him from crossing Spain's 500-mile Camino de Santiago. The adventure, with his best friend Patrick Gray, led to the book and movie "I'll Push You." Justin and...
Jun 21, 2022
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Shahid Khan, MD, of Imperial College London, on why an update to ICD-10 coding is urgently needed for correct diagnosis...
Jun 15, 2022
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Marissa Penrod, founder of the Michigan-based nonprofit group Team Joseph, which provides financial assistance to families like her own that have been affected by Duchenne...
Jun 1, 2022
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mary Beth Scholand, MD, director of the Interstitial Lung Disease Program at the University of Utah in Salt Lake City. Dr. Scholand discusses a newly announced initiative, "Bridging Specialties: Timely Diagnosis for ILD Patients," between...
Jun 1, 2022
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mary Beth Scholand, MD, director of the Interstitial Lung Disease Program at the University of Utah in Salt Lake City. Dr. Scholand discusses a newly announced initiative, "Bridging Specialties: Timely Diagnosis for ILD Patients," between...