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Rare Care Podcast

Jul 27, 2022

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Paul Heaton, a Montana cattle rancher whose son has Duchenne, on his Calves2Cure DMD fundraising...


Jul 20, 2022

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Emil Kakkis, MD, PhD, founder and CEO of San Francisco-based Ultragenyx, on the increasingly complex challenges facing developers of drugs to treat rare...


Jul 13, 2022

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Pradeep Mammen, MD, professor of internal medicine and director of the Neuromuscular Cardiomyopathy Clinic at UT Southwestern in Dallas, Texas. Dr. Mammen, a speaker at the CureDuchenne 2022 Futures conference, has done extensive research on the...


Jul 5, 2022

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews CureDuchenne's Diana Castro, MD, on efforts to reach Spanish-speaking families affected by Duchenne...