May 30, 2024
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sarah Glass, PhD, chief operating officer of the n-Lorem Foundation—and the mother of a boy with an ultra-rare disease.
May 28, 2024
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Dimitrios Karussis, MD, PhD, who heads the Multiple Sclerosis Center at Israel's Hadassah University Hospital...
May 16, 2024
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mary Morlino, who has sarcoidosis and is the patient navigator for the Undiagnosed Diseases...
May 7, 2024
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Tracy Sharp at the Muscular Dystrophy Association's 2024 Clinical & Scientific Conference in Orlando, Florida. Sharp, 70, has Lambert-Eaton myasthenic syndrome (LEMS), a very rare and debilitating neuromuscular...
May 3, 2024
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Chafic Karam, MD, an expert on chronic inflammatory demyelinating polyneuropathy with the University of Pennsylvania's Perelman School of Medicine in...